From Maine to North Carolina – barefoot. British solider raises cash to battle daughter’s uncommon illness

News 12 employees

09/22/2021, 12:06 am

Updated on: 22.09.2021, 00:54

British Army Major Chris Brannigan is stopping tonight on a long and difficult journey down the northeast coast to raise funds to help his daughter fight a rare genetic mutation.

His 9-year-old daughter Hasti has Cornelia de Lange Syndrome or CDLS – a genetic mutation that affects physical and mental development. Brannigan says it is difficult to raise funds to develop a therapy for the rare disease.

“She wants her daddy at home,” he told News 12 in Bridgeport on Tuesday night. “She wants her new medicine, but if I don’t complete this trip unless I collect the money, it just won’t happen.”

Brannigan works in a laboratory in Bar Harbor, stopping at hospitals and universities along the way to raise awareness of CDLS. He will be staying at a Bridgeport fire station overnight.

Dad strolling barefoot down Atlantic Coast to boost cash for daughter’s uncommon well being situation

Posted: 09/17/2021 / 12:07 PM EDT
Updated: 09/17/2021 / 12:07 PM EDT

JACKSONVILLE, NC (WNCT) – Finding hope for Hasti. That’s what keeps father Chris Brannigan going.

Brannigan wanders from Maine to North Carolina without shoes. Everything to give his daughter a better life.

“Hasti and I took little barefoot walks just half a mile around our house and we really enjoyed that, we talked the whole time,” said Brannigan. “It has occurred to her now that this walk will allow me to take her new medicine home with me.”

Hasti needs gene therapy. She has CdLS, a rare disease that affects growth, cognition, and more. This makes it difficult for the little girl to lead a normal life.

“Like all 9-year-old girls, she loves trampoline jumping, swimming and ballet lessons,” said the father. “Her passion is cooking. She is always in the kitchen, peeling carrots and potatoes and chopping everything up. She would really like to become a cook one day. “

The clock is ticking to get this treatment as her condition is expected to worsen around the age of 12. The problem is that it costs $ 3.5 million to conduct a clinical trial for the disease.

“The thought that we might change their fate keeps me going,” said Brannigan. “It’s huge, it’s all I can really think about every day.”

That’s why her father runs 1,200 miles … barefoot!

“Every time someone sees me walking barefoot they double-take because it’s so bizarre and very painful, and that’s the idea of ​​getting people to look twice,” he said.

Brannigan’s final destination will be in Jacksonville at Camp Lejeune. He hopes to end his trip there by the end of October.

“I served in the British Army for 14 years, I thought it would be great to deal with my people and my military family,” said Brannigan.

He has more than 800 miles to go.

“My feet get a little more sensitive and a little more bruised every day,” he said. “I just have to keep going. I keep thinking about what Hasti wants and what she deserves, and that drives me to take steps. “

The nonprofit has raised over $ 1 million. Brannigan said although this looks like a lot of money, they still have to double it up to help his daughter and others like her.

Brannigan said every donation is important. To donate, visit this link.

Nick Carter reveals child daughter’s identify is Pearl | Leisure Information

Nick and Lauren Carter named their daughter Pearl.

A Backstreet Boys graduate and his wife became parents for the third time on April 21, and Nick has now revealed that their new name is Pearl.

Nick posted a photo of his daughter relaxing in a locker that looks like a gift from someone on her Instagram story on Friday (6/4/21).

And out of gratitude to the person who sent the gift, I wrote “Pearl LOVESThank you”.

Pearl is a new addition to the Carter family, joining brothers Odin Rein (5 years old) and Sisha (19 months old).

Meanwhile, Nick confirmed the arrival of his second daughter in an Instagram post in April.

He said at the time: “I am proud to announce that our baby was officially born. But the parents are so familiar that sometimes things don’t go according to plan. We have some minor complications, but it’s gotten a little better since the first night.

“I want to thank everyone who prayed and thought well during this time. I will keep you updated with the latest information. “

Nick and Lauren have announced that they will give birth in January.

Lauren said, “I was determined to have two children and I was prepared and prepared for it. I should have two children. I was about five months pregnant. I didn’t have any symptoms. There were no signs of pregnancy. One day I felt something move in my body. “Nick”, something is wrong. I have to go to the doctor. I think something is wrong. “I didn’t think I was pregnant because I shouldn’t have had any more children. “

Nick Carter reveals that the baby daughter’s name is Pearl | Entertainment news

Source link Nick Carter reveals that the baby daughter’s name is Pearl | Entertainment news

‘Previous girl’ garments not daughter’s, granddaughters’ type | Recommendation

LOVE ABBY: My mom keeps buying me (and my teenage daughters) clothes from a catalog for older women. Think of lots of bird prints, flowers, and pants with an elastic waist.

She is an amazing mother and grandmother and an inspiration in my life. I appreciate her generosity and that she thinks of us. Neither of us wear the clothes, however, and I don’t want to hurt her feelings by telling her that we are “pretty special” when it comes to style. We’re very frugal and even buy second-hand clothing stores.

Should I get in touch or continue donating the clothes quietly? The last thing I want is to hurt her.

– Flinching in Lansing, me.

LOVE WINCING: Don’t tell your mother that you and your daughters donated the clothes she ordered for you. Tell her that teenage girls dress much differently these days than women your age and yours, and that it would be “wise” to ask them what they might like or give them money to buy something of their choice . It is the truth and she should hear it.

What she orders for you, thank her for her generosity and point out that since the pandemic began, most women have worn jeans, sweats, leggings, etc., and that although you are grateful for them, you think that she should be aware of it. Fashions change and nothing is as constant as change.

Dear Abby was written by Abigail Van Buren, also known as Jeanne Phillips, and founded by her mother Pauline Phillips. Contact love Abby below www.DearAbby.com or P.O. Box 69440, Los Angeles, CA 90069.

COPYRIGHT 2021 ANDREWS MCMEEL SYNDICATION

Our Native Daughters convey Black ladies’s voices to forefront | Leisure

“There is stigma and there is a lot of pain and there is a lot of reasons why it is,” said McCalla.

Songs of Our Native Daughters, released in 2019 on the Smithsonian Folkways record label, focused on the stories of women during the transatlantic slave trade, but also on the triumphs of black women. One song focuses on Polly Ann, the wife of the steel folk hero John Henry, while “Quasheba, Quasheba” is about Russell’s African ancestor who was bought as a slave.

“People are ready to deal with this story, and I think doing it with music is the best way to disarm a person,” said Kiah.

Kiah received a Grammy nomination for her song “Black Myself” from the record, which she incorporated into a new version released on Friday. The song deals with racial discrimination that focuses on the darkness of a person’s skin, inspired by experiences they have seen in their own life as well as historical accounts.

“There’s this idea that the lighter you get, the more you are respected by the white supremacist society that they lived in, that we still live in,” Kiah said.

The documentary shows her on tour in front of a largely white audience, a topic that sparked a lot of internal discussions in the group. They are not responsible for how their music is marketed in a commercial music industry, but what does it mean if they don’t reach a black audience?