Posted: 09/17/2021 / 12:07 PM EDT
Updated: 09/17/2021 / 12:07 PM EDT
JACKSONVILLE, NC (WNCT) – Finding hope for Hasti. That’s what keeps father Chris Brannigan going.
Brannigan wanders from Maine to North Carolina without shoes. Everything to give his daughter a better life.
“Hasti and I took little barefoot walks just half a mile around our house and we really enjoyed that, we talked the whole time,” said Brannigan. “It has occurred to her now that this walk will allow me to take her new medicine home with me.”
Hasti needs gene therapy. She has CdLS, a rare disease that affects growth, cognition, and more. This makes it difficult for the little girl to lead a normal life.
“Like all 9-year-old girls, she loves trampoline jumping, swimming and ballet lessons,” said the father. “Her passion is cooking. She is always in the kitchen, peeling carrots and potatoes and chopping everything up. She would really like to become a cook one day. “
The clock is ticking to get this treatment as her condition is expected to worsen around the age of 12. The problem is that it costs $ 3.5 million to conduct a clinical trial for the disease.
“The thought that we might change their fate keeps me going,” said Brannigan. “It’s huge, it’s all I can really think about every day.”
That’s why her father runs 1,200 miles … barefoot!
“Every time someone sees me walking barefoot they double-take because it’s so bizarre and very painful, and that’s the idea of getting people to look twice,” he said.
Brannigan’s final destination will be in Jacksonville at Camp Lejeune. He hopes to end his trip there by the end of October.
“I served in the British Army for 14 years, I thought it would be great to deal with my people and my military family,” said Brannigan.
He has more than 800 miles to go.
“My feet get a little more sensitive and a little more bruised every day,” he said. “I just have to keep going. I keep thinking about what Hasti wants and what she deserves, and that drives me to take steps. “
The nonprofit has raised over $ 1 million. Brannigan said although this looks like a lot of money, they still have to double it up to help his daughter and others like her.
Brannigan said every donation is important. To donate, visit this link.