RICHMOND, Va. (WRIC) – On Saturday, the Children’s Tumor Foundation hosted a Shine a Light NF Walk in Richmond’s Deep Run Park to help children with neurofibramatosis, a rare cancer.
Among those attending was Gabriel Bratton, 10, who was diagnosed with NF at 4 months of age but recently started new treatment that allowed him to use his right hand again.
“It’s like a tree, so it’s like the roots that get caught in the nerves and are very dangerous,” said Julie Cranor, Gabriel’s mother. “So it was a breeze to take the medication – it either worked or it didn’t.”
This drug is Koselugo, the first FDA-approved treatment for inoperable plexiform neurofibromas, the type of NF Gabriel. Although there is currently no cure, the CFT said in a press release that Gabriel’s tumor has shrunk by 20 percent.
After over a year in Koselugo, Cranor said: “It was great.”
When asked how he is, Gabriel only said: “Good!”
The walk was partly organized by the Gabriel team, which uses events like this to draw attention to NF and “walk and collect donations in its honor”.
“We couldn’t be more grateful to have an event like the Shine a Light NF Walk,” said Cranor. “It made us aware of how many people in our community are fighting just like Gabriel.”