News 12 employees

09/22/2021, 12:06 am

Updated on: 22.09.2021, 00:54

British Army Major Chris Brannigan is stopping tonight on a long and difficult journey down the northeast coast to raise funds to help his daughter fight a rare genetic mutation.

His 9-year-old daughter Hasti has Cornelia de Lange Syndrome or CDLS – a genetic mutation that affects physical and mental development. Brannigan says it is difficult to raise funds to develop a therapy for the rare disease.

“She wants her daddy at home,” he told News 12 in Bridgeport on Tuesday night. “She wants her new medicine, but if I don’t complete this trip unless I collect the money, it just won’t happen.”

Brannigan works in a laboratory in Bar Harbor, stopping at hospitals and universities along the way to raise awareness of CDLS. He will be staying at a Bridgeport fire station overnight.